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Application of the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) to Cleft Lip and Palate


Neumann, Sandra; Romonath, Roswitha


American Cleft Palate-Craniofacial Association


The Cleft Palate-Craniofacial Journal, 2012, Volume 49 (Number 3), Seite 325-346, New York: Decker Periodicals, ISSN: 1055-6656 (Print); 1545-1569 (Online)





In recent health policy discussions, the World Health Organization (WHO) has urged member states to implement the International Classification of Functioning, Disability and Health: Children and Youth Version (ICF-CY) in their clinical practice and research. The purpose of this study was to identify codes from the ICF-CY relevant for use among children with Cleft Lip and Palate (CL/P), thereby showing the value of these codes for interprofessional Cleft Palate-Craniofacial Teams.


The authors conducted a 5-step consensus procedure by studying the ICF-CY, its background literature and the current state of CL/P, identifying meaningful terms, developing a consensus-based list of terms, linking these terms separately to ICF-CY categories/codes and finally providing a consensus-based list of ICF-CY categories/codes, which constitutes the first draft of a CL/P ICF-CY core set in a preparatory phase.


Adopting ICF-CY domains in CL/P can aid experts in identifying appropriate starting points for assessment, counseling, and therapy. When used as a clinical tool, it encourages going beyond patient perspectives that are focused solely on the client. The ICF-CY favors an expanded ecological perspective - in this case supporting a view of children that accounts for their environment and their familial/societal context. In order to establish improved, evidence-based interdisciplinary treatments for children with CL/P, more studies are needed that seek to identify all the influencing conditions of activities, children's participation and barriers/facilitators in their environments.

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Zeitschriftenbeitrag / Forschungsergebnis


The Cleft Palate-Craniofacial Journal

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Informationsstand: 10.05.2012

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