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Bibliographische Angaben zur Publikation

Narrative Medicine in Amyotrophic Lateral Sclerosis and a rehabilitation project based on International Classification of Functioning, Disability and Health (ICF)


Autor/in:

Ciotti, Silvia; Bianconi, Fortunato; Saraceni, Vincenzo Maria [u. a.]


Herausgeber/in:

k. A.


Quelle:

American Journal of Physical Medicine and Rehabilitation (AJPMR), 2018, Volume 87 (Issue 11), Seite 832-838, Hagerstown, Maryland: Lippincott Williams & Wilkins, ISSN: 0894-9115 (Print); 1537-7385 (Online)


Jahr:

2018



Abstract:


Objective:

To systematize the disability condition related to Amyotrophic Lateral Sclerosis (ALS) patients using the International Classification of Functioning, Disability and Health (ICF) and Narrative Medicine approach as a common tool to identify a patient's functional problems. Once identified, this can be used as the basis for an individual rehabilitation project.

Design:

An observational study on patients residing in a central region of Italy with a diagnosis of ALS. The narrative approach involved listening to the patients' stories while guiding them with a semi-structured questionnaire of 19 ICF items taken from the WHO-DAS II. A score from 0-4 for capacity (C) and performance (P) was adopted to evaluate each patient's functioning in their daily living activities.

Results:

The ICF questionnaire was able to discriminate among responders (p<0.001). The disability areas were in daily activities and social life (C 3-4, P 3-4), while the performance items using facilitators were in the areas of communication, movement, personal care and interaction with people (C 3-4, P 1-2).

Conclusions:

Narrative Medicine using ICF in ALS highlighted the main rehabilitation goals necessary to personalize a rehabilitation program, emphasizing the gap between capacity and performance. The environmental factors facilitating the areas of communication, movement, personal care and interaction with people and not influencing daily activities and social life were identified.


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Dokumentart:


Zeitschriftenbeitrag / Forschungsergebnis




Bezugsmöglichkeit:


American Journal of Physical Medicine & Rehabilitation
Homepage: https://journals.lww.com/ajpmr/pages/default.aspx

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Referenznummer:

R/ZA7391


Informationsstand: 22.03.2019

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