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Participation as an outcome measure in psychosocial oncology: Content of cancer-specific health-related quality of life instruments


Autor/in:

van der Mei, Sijrike F.; Dijkers, Marcel P.; Heerkens, Yvonne


Herausgeber/in:

k. A.


Quelle:

Quality of Life Research, 2011, Volume 20 (Number 10), Seite 1617-1627, Dordrecht: Springer Niederlande, ISSN: 0962-9343 (Print); 1573-2649 (Online)


Jahr:

2011



Link(s):


Link zu dem Beitrag (PDF | 216 KB)


Abstract:


Purpose:

To examine to what extent the concept and the domains of participation as defined in the International Classification of Functioning, Disability and Health (ICF) are represented in general cancer-specific health-related quality of life (HRQOL) instruments.

Methods:

Using the ICF linking rules, two coders independently extracted the meaningful concepts of ten instruments and linked these to ICF codes.

Results:

The proportion of concepts that could be linked to ICF codes ranged from 68 to 95%. Although all instruments contained concepts linked to Participation (Chapters d7-d9 of the classification of 'Activities and Participation'), the instruments covered only a small part of all available ICF codes. The proportion of ICF codes in the instruments that were participation related ranged from 3 to 35%. 'Major life areas' (d8) was the most frequently used Participation Chapter, with d850 'remunerative employment' as the most used ICF code.

Conclusions:

The number of participation-related ICF codes covered in the instruments is limited. General cancer-specific HRQOL instruments only assess social life of cancer patients to a limited degree. This study's information on the content of these instruments may guide researchers in selecting the appropriate instrument for a specific research purpose.


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Schlagworte:
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Dokumentart:


Zeitschriftenbeitrag / Forschungsergebnis / Online-Publikation




Bezugsmöglichkeit:


Quality of Life Research
Homepage: https://link.springer.com/journal/11136

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Referenznummer:

R/ZA5015


Informationsstand: 03.12.2012

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