Bibliographische Angaben zur Publikation
Using the international classification of functioning, disability and health to expand understanding of paralysis in the United States through improved surveillance
Fox, Michael H.; Krahn, Gloria L.; Sinclair, Lisa B. [u. a.]
American Association on Health and Disability
Disability and Health Journal, 2015, Volume 8 (Issue 3), Seite 457-463, New York: Elsevier, ISSN: 1936-6574
Surveillance on paralysis prevalence has been conceptually and methodologically challenging. Numerous methods have been used to approximate population-level paralysis prevalence estimates leading to widely divergent prevalence estimates.
To describe three phases in use of the International Classification of Functioning, Disability and Health (ICF
) as a framework and planning tool for defining paralysis and developing public health surveillance of this condition.
Description of the surveillance methodology covers four steps: an assessment of prior data collection efforts that included a review of existing surveys, registries and other data collection efforts designed to capture both case definitions in use and prevalence of paralysis; use of a consensus conference of experts to develop a case definition of paralysis based on the ICF
rather than medical diagnostic criteria; explanation of use of the ICF
framework for domains of interest to develop, cognitively test, validate and administer a brief self-report questionnaire for telephone administration on a population; and development and administration of a Paralysis Prevalence and Health Disparities Survey that used content mapping to back code items from existing national surveys to operationalize key domains.
coding led to a national population-based survey of paralysis that produced accurate estimates of prevalence and identification of factors related to the health of people in the U.S.
living with paralysis.
can be a useful tool for developing valid and reliable surveillance strategies targeting subgroups of individuals with functional disabilities such as people with paralysis and others.
Zeitschriftenbeitrag / Forschungsergebnis
Disability and Health Journal
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